The organisations listed here offer help and support to those affected by DM1 and their families.  Many are also involved in funding research and supporting advancements in treatments for DM1.


The Netherlands

Dutch Association for Neuromuscular Diseases (Spierziekten Nederland)

Website: www.vsn.nl


Germany

Deutsche Gesellschaft für Muskelkranke. (DGM)

Website: www.dgm.org

Email: info(@)dgm(.)org

 

France

Association Française contre les Myopathies (AFM)

Website: www.afm-telethon.com

 

Portail d'infomation sur la M aladie de Steinert DM1 (PIMS)

Website: www.maladiedesteinert.info

 

United Kingdom

Myotonic Dystrophy Support Group

Website: www.myotonicdystrophysupportgroup.org

Email: mdsg(@)tesco(.)org

 

Muscular Dystrophy Campaign

Website: www.muscular-dystrophy.org

Email: info(@)muscular-dystrophy(.)org

 

North America

Myotonic Dystrophy Foundation (USA)

Website: www.myotonic.org

Email: info(@)myotonic(.)org

 

Marigold Foundation (Canada)

Website: www.marigoldfoundation.org

Email: admin(@)marigoldfoundation(.)org

 

International

TREAT-NMD

Website: www.treat-nmd.eu

Email: www.info(@)treat-nmd(.)eu