The aim of OPTIMISTIC
What is OPTIMISTIC?
The full title of OPTIMISTIC is:
OPTIMISTIC: Observational Prolonged Trial In Myotonic dystrophy type 1 to Improve Quality of Life- Standards, a Target Identification Collaboration.
OPTIMISTIC is a collaboration between researchers and doctors from the Netherlands, Germany, France and the United Kingdom. OPTIMISTIC aims to improve clinical practice and standards of care for patients with DM1 internationally.
What is ReCognitION?
The full title of ReCognitION is:
ReCognitION: Recognition and Validation of Druggable Targets from the Response to Cognitive Behaviour Therapy in Myotonic Dystrophy type 1 patients from Integrated –Omics Networks.
ReCognitION is an international project aimed at the discovery of novel drugs for the treatment of Myotonic Dystrophy based on the results of the OPTIMISTIC study.
We hypothesize that a comparable but DM1-specific CBT intervention, aimed at the fatigue maintaining beliefs and behaviours, tailored to the individual DM1 patient, will lead to a significant reduction of fatigue and improved quality of life.
HELP AND SUPPORT
Here you will find local organisations that provide assistance and information to people affected by DM1 and their families. Here you can also find your national patient registry, being part of a registry may give you the opportunity to take part in clinical research like OPTIMISTIC.
This newsletter will answer some frequently asked questions and provide more information on fatigue and how it affects people with DM1.