Organisations
The organisations listed here offer help and support to those affected by DM1 and their families. Many are also involved in funding research and supporting advancements in treatments for DM1.
The Netherlands
Dutch Association for Neuromuscular Diseases (Spierziekten Nederland)
Website: www.vsn.nl
Portail d’infomation sur la M aladie de Steinert DM1 (PIMS)
Website: www.maladiedesteinert.info
United Kingdom
Myotonic Dystrophy Support Group
Website: www.myotonicdystrophysupportgroup.org
Email: mdsg@tesco.org
Muscular Dystrophy Campaign
Website: www.muscular-dystrophy.org
Email: info@muscular-dystrophy.org
North America
Myotonic Dystrophy Foundation (USA)
Website: www.myotonic.org
Email: info@myotonic.org
Marigold Foundation (Canada)
Website: www.marigoldfoundation.org
Email: admin@marigoldfoundation.org