The aim of OPTIMISTIC:Improve clinical practice for patients suffering from myotonic dystrophy type 1 (DM1)
We hypothesize that a comparable but DM1-specific CBT intervention, aimed at the fatigue maintaining beliefs and behaviours, tailored to the individual DM1 patient, will lead to a significant reduction of fatigue and improved quality of life.
Here you will find local organisations that provide assistance and information to people affected by DM1 and their families
Here you will find your national patient registry, being part of a registry may give you the opportunity to take part in clinical research like OPTIMISTIC.
NEW: Newsletter 4 click here
This newsletter will answer some frequently asked questions and provide more information on fatigue and how it affects people with DM1.
Here you will find the first, second and third OPTIMISTIC newsletter (English, German, French and Dutch version).
Information for patients